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Support Groups

Ups and Downs South West

email: info@upsanddownssw.org
tel: 01278 691 100
website: www.upsanddowns.net
information: We are a Down’s syndrome support organisation based in Somerset but with a membership currently encompassing families from Banes, Cornwall, Devon, Dorset, Hampshire, Herefordshire, Glos, Monmouthshire and Wiltshire

Chichester DS Support Group

email: group@chicdownsok.org
tel: Group Secretary, Helen Gurnhill 01243 602 530
website: www.chidownsok.org
information: We hold various fund-raising events throughout the year, to help fund speech therapy for our children, equipment resources and tricycles. We also have social   events during the year where all the families can get together. We had a summer party and Christmas party as well as bowling matches and other events for the children. Some of the children attend mainstream schools and some attend special schools. Some of the children attend a child development centre when they are small.

downsyndrome OK

email: info@downsyndromeOK.org.uk
tel: Group Secretary, Karen Edmonds 0208 330 1597
website: www.downsyndromeok.org.uk
information: downsyndrome OK is a parent led, registered charity offering help and support to families, professionals and people with Down’s syndrome in Surrey, Sussex and South London.

Down’s Syndrome Oxford

tel: Group Secretary, Emily Robinson 01869 347 194
website: www.dsoxford.org.uk
information: Down’s Syndrome Oxford is organised and funded by parents and supporters to provide information, help and activities for children with Down’s syndrome and their families in the Oxfordshire area. Members of DSO are children and adults with Down’s syndrome, their parents, carers and supporters of the charity plus   many key professionals such as physiotherapists, pre-school teacher councillors, teaching assistants, health visitors and other people working in the community with people with Down’s syndrome

East Berkshire Down’s Syndrome Support Group

email: contact@ebdssg.org.uk
website: www.ebdssg.org.uk
information: We are a group of parents of children with Down’s syndrome. The children’s’ ages range from new-born to those in their late teens. The Group meets regularly to share information on matters affecting us and our children, organise social and fund-raising events and discuss aspects that affect us all, from education through to how to apply for a blue badge for the car. The main emphasis of the group is to support each other and pass on valuable experience and information to make life that bit easier

Kent Wide Down Syndrome Support Group

email: info@kentwideds.org
tel: 07787 947 142
website: www.kentwideds.org
information: Kent Wide Down Syndrome Group (KWDSG) is affiliated to the Down’s Syndrome Association. Originally we started as smaller parent run support group in Medway, Canterbury, Thanet, Herne Bay – members of these smaller groups got together and decided that a larger group would have a larger voice, more positive changes and support could be given or made. We consist of parents, carers and interested parties and people with Down’s syndrome. We are run by a group of volunteer trustees from all areas of Kent.

Portsmouth Down Syndrome Support Group (Footprints)

email: fieldlucy@yahoo.co.uk
Tel: Secretary – Lucy Field 07747 041576
website: www.footprintsds.org
information: Established in 2009, Footprints, Portsmouth Down Syndrome Support Group, is a parent led registered charity, that offers a warm welcome to children with Down syndrome, their families, carers and friends in the local area. We offer friendship, support, advice and essential services. We have recently extended our range of services and are now able to offer new parent and baby advice groups, advice sessions, coffee mornings, preschool Early Development Groups, a School Outreach Service, school age specialist speech and language therapy, as well as training days for parents and professionals. We also provide a drama group and preschool sing and sign group, as well as fundraising activities and social events. The group is affiliated with the Down’s Syndrome Association.

P.S.D.S

email: enquires@PSDS.info
website: www.psds.info
information: psds is a registered charity whose principal goal is to provide support for children with Down’s syndrome and   their families. We meet regularly as families to share our experiences and provide a network of support, friendship, advice and expertise. This benefits not only our children with Down’s syndrome, but also their siblings, ourselves as parents and all family members. We also provide a range of professional services, such as early development groups and speech and   language therapy, and have an extensive library of resources for our members and their families to make use of.

South Bucks Down’s Syndrome Group

email: Group Secretary, Jacqui Brearley jacquibrearley@idnet.com
website: www.sbdsg.org.uk
information: Local support group for people with Down’s syndrome and their families in South Buckinghamshire

Stepping Stones

email: enquiries@steppingstonesds.co.uk
tel: Emma Hall 07541 572 474 or Sharon Smith 07923 591 710
website: www.steppingstonesds.co.uk
information: Parent Led support group for parents and carers of children with Down’s syndrome. Offers support, social events, training, communication groups, sports   sessions, horse-riding, dance & drama, sensory suits sessions, outings, school resources and support and a free lending library

The Rainbow Club (Isle of Wight) Down’s Syndrome Support Group

website: http://www.iowrainbowclub.webs.com/
information: The Rainbow club is the only support group on the island for people with Down’s syndrome. We get together fortnightly at Ryde and Newport on Saturdays. Formed in July 2007 by Clare Williams after her youngest son was born with Down’s syndrome. Not finding any support group on the Island she decided there was definitely a need. The group has a growing resource library of books, DVDs available to loan out to its members. We also have family days out, fund training courses and are hoping to have our own speech and language support sessions very soon

21 & Co.

email: sue@21andco.org.uk
tel: Sue Robson 07817 537 213
website: www.21andco.org.uk
information: Our members meet regularly to share their experiences and give each other advice, support and friendship, whilst we offer information and knowledge about   Down’s syndrome. New members are always welcome. Whether you are a new parent or have older children, come along to our next event. We can offer a fun and   stimulating environment for your children, and a place where you can meet other parents, siblings and family members.

West Berkshire Down’s Syndrome Group

tel: Group Administrator, Charlie Williams 07847 347 528
website: www.wbdsg.org.uk
information: The aim of the group is to meet the needs of local people with Down’s syndrome, their carers and families and so promote happiness, health, education, and participation in society.

Worthing kiDS and Dapper Snapper

tel: 07570 768 893
website: www.worthingkids.webs.com
information: Worthing kiDS is a Down’s syndrome support group for Worthing and the surrounding area. The group is for children and their families. The children have fun while the parents get a chance to relax and chat. It is also a good opportunity for their siblings to meet up and compare experiences. We have guest speakers twice a year and visits from child entertainers. We have an   information table and a small book and educational toy library.

Seaford Down’s Syndrome and Special Needs Support Group

tel: Trustee – Dave Brown 01273 517294 or 07802 832835, Trustee – Mandi Brown 01273 517294
email: dave@seaford-dssnsg.co.ukmandi@seaford-dssng.co.uk
website: www.seaford-dssnsg.co.uk
information: The Seaford Down’s Syndrome and Special Needs Support Group is a registered charity and aims to provide enrichment to the lives of children with Down’s   Syndrome and other special needs and their families.