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Useful Contacts

We recognise the importance of contact with professionals, here’s a list of invaluable service providers. The following list comprises of variety of nationwide and South East organisitions.

Parentlink

The East Sussex Parent Link Service provides information, advice and support for parents and carers of children with special educational needs.

www.parentlinksussex.org.uk
Helpline: 0345 60 80 192

Amaze Brighton

Amaze gives information, advice and support to parents of children with special needs and disabilities in Brighton & Hove.

www.amazebrighton.org.uk
Helpline: 01273 772289

East Sussex Parent and Carers’ Council

East Sussex Parent and Carers’ Council. Parents and Carers working in partnership with local services. Focusing on children and young people, aged 0 -25.

www.eastsussexpacc.org
Tel: 07432 0627242

Down’s Syndrome Association

Down’s Syndrome Association – Helping people with Down’s syndrome to live full and rewarding lives.

www.downs-syndrome.org.uk
Tel: 0845 230 0372

Down Syndrome Educational Trust

The Down Syndrome Educational Trust is a charity, based in the United Kingdom , that works to advance the development and education of individuals with DS.

www.downsed.org

Downs Syndrome Heart Group

Down’s Heart Group is a charity offering support and information relating to heart conditions associated with Down’s Syndrome.

www.dhg.org.uk
Tel: 0300 102 1644

Contact a Family

Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance – UK.

www.cafamily.org.uk
Free Helpline: 0808 808 3555

West Sussex – National Parent Partnership Network

Some services we offer: Impartial advice and support to parents of children who have special educational needs. Links with local and national voluntary.

www.parentpartnership.org.uk
Tel: 0845 075 1008

Seagull’s Special Football Clubs

www.seagulls-specials.org.uk
Tel: 07919 051848 or 07803 902044

Grants and Benefits

Disability Living Allowance and Carers Allowance Info.

Benefits & credits Carer’s Allowance, apply for Attendance Allowance or Disability Living Allowance.
www.direct.gov.uk

Motability Cars

Over the past 30 years, Motability has helped more than three million disabled people get mobile by exchanging their mobility allowance for a new car, scooter www.motability.co.uk

The Family Fund

Provides grants for children with special needs based on the families needs, things like toys, driving lessons, holidays, washing machines etc,
www.familyfund.org.uk
Tel: 0845 1304542

Cerebra

Grants to offer assistants to improve the quality of life for kids with special needs.
www.cerebra.org.uk
Tel: 01267 244216

Care for the Carers

Care for the Carers supports people in East Sussex who look after sick or disabled relatives, friends, neighbours, partners or children in their own homes.
www.cftc.org.uk
Tel: 01323 738390